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Dementia Research

You can contribute to advancing knowledge to prevent, delay and live well with dementia.

The Dementia Society’s vision is to ensure that no one faces dementia alone. And until there is a cure, that is what we will continue to strive for, providing support, education and activities for people living with dementia and for the people who care for them.

About the Research Opportunities Posted Below
The Dementia Society is frequently contacted by many partner and other organizations conducting social and medical research into the causes and prevention of dementias, including Alzheimer’s Disease. Before sharing these opportunities with you, we confirm the parties and ensure ethical practices are used in their research. If you are interested in any of the opportunities below, we invite you to contact the respective party listed to learn more.

Thank you for helping to advance the local, national and international drive to learn more, so no one has to face dementia.
TRAILBLAZER-ALZ, a clinical drug study for people in early stages of Alzheimer’s disease.

Conducted at the Bruyère Research Institute, Ottawa
Contact:
Website: https://trailblazer2study.com/
Phone 613-562-63-28

The Bruyère Research Institute is looking for participants to be part of a clinical drug study in dementia.

The TRAILBLAZER-ALZ study conducted at Bruyère Research Institute will look at whether an investigational drug, Donanemab, can help slow or stop memory loss in people with early stages of Alzheimer’s disease.

Recent results indicated that the drug significantly slowed cognitive and functional decline in patients with Alzheimer's disease by 32 percent compared with placebo. The study will also test whether an experimental blood test can detect the presence of Alzheimer’s disease.

From more information, visit https://trailblazer2study.com/

This international pivotal clinical drug study has been approved by The Bruyère Research Institute Ethics Board

Last updated: 2021-05-18
Perceptions of the Caregiving Role Among Young-Onset Dementia Adult Child Caregivers
Conducted at the University of Waterloo
Contact:
Email: C3berry@uwarerloo.ca
Phone : 519-503-2245

By obtaining more knowledge about the perceptions of young-onset dementia adult child caregivers in Canada, the findings of this study can assist with the future development of age[1]appropriate resources, services, and supports for this population. This study may also highlight the need for the expansion of future research to learn more about the perceptions of young-onset dementia adult child caregivers.

This study has been reviewed and received ethics clearance through a University of Waterloo Research Ethics Committee.

Last updated: 2021-05-18
An international study in rare or young-onset Dementia. The Rare Dementia Support (RDS) Impact Study
Conducted in collaboration between Nipissing University, Canada; University College London (UCL), England; and Bangor University, Wales
Contact:
Email 1: adetolag@nipissingu.ca
Email 2: maryps@nipissingu.ca

Website: https://www.nipissingu.ca/academics/faculty-education-and-professional-studies/social-work/rare-dementia-support

The Rare Dementia Support (RDS) Impact Study is a 5-year (2020-2024) collaboration to examine the unique experiences and support needs of people living with rare or young onset dementias and their family care partners.

Between 5-15% of people living with dementia have a rare or young onset type, which tends to occur in younger people (under 65 years) and is not well understood. Study participants are invited to share their experience of living with or caring for someone living with a rare or young onset dementia to better understanding of the lived experience as well as the development of tailored support interventions and educational resources.

The study has been approved by Nipissing University Research Ethics Board.

Last updated: 2021-05-18
Supporting Family Caregivers of Persons Living with Dementia
Conducted at McMaster University and the University of Alberta
Contact:
Natalie Meisenburg
Email: meisenno@mcmaster.ca

The study team is looking for family caregivers who are providing care for a family member or friend, aged 65 years and older, who is living in a long-term care home and has Alzheimer Disease or Related Dementia.

Family caregivers of persons with dementia undergo multiple transitions during their experience. Studies with caregivers of persons with dementia suggest that the experience of giving care can affect the physical and mental health of caregivers in both positive and negative ways.

The purpose of this phase of the study is to evaluate a new way of supporting family caregivers by determining how effective the approach is, and how it may influence factors such as your hope, quality of life, loss and grief, loneliness, and ability to deal with adverse situations. The overall goal of this research is to help caregivers.

Family caregivers who are eligible to participate in the study are:
• 18 years of age or older;
• Providing physical, emotional, or financial care for a family member or friend who is an older adult (65 years of age and older), who is currently living in a long term care home with Alzheimer Disease or Related Dementia
• English-speaking
• Able to use and have access to a computer/iPad/cell phone with internet; and
• Have an email address

Study participants will be randomly assigned to one of two different ways of supporting family caregivers. There is an equal chance of being assigned to either group, participants will not know to which group they have been assigned. At the end of the study, you will be given the opportunity to receive the approach that the other group had, and to ask any questions.

This research study has been reviewed by the Hamilton Integrated Research Ethics Board

Last updated: 2021-06-02
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