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Dementia Research

You can contribute to advancing knowledge to prevent, delay and live well with dementia.

The Dementia Society’s vision is to ensure that no one faces dementia alone. And until there is a cure, that is what we will continue to strive for, providing support, education and activities for people living with dementia and for the people who care for them.

About the Research Opportunities Posted Below
The Dementia Society is frequently contacted by many partner and other organizations conducting social and medical research into the causes and prevention of dementias, including Alzheimer’s Disease. Before sharing these opportunities with you, we confirm the parties and ensure ethical practices are used in their research. If you are interested in any of the opportunities below, we invite you to contact the respective party listed to learn more.

Thank you for helping to advance the local, national and international drive to learn more, so no one has to face dementia.
TRAILBLAZER-ALZ, a clinical drug study for people in early stages of Alzheimer’s disease.

Conducted at the Bruyère Research Institute, Ottawa
Website: https://trailblazer2study.com/
Phone 613-562-63-28

The Bruyère Research Institute is looking for participants to be part of a clinical drug study in dementia.

The TRAILBLAZER-ALZ study conducted at Bruyère Research Institute will look at whether an investigational drug, Donanemab, can help slow or stop memory loss in people with early stages of Alzheimer’s disease.

Recent results indicated that the drug significantly slowed cognitive and functional decline in patients with Alzheimer's disease by 32 percent compared with placebo. The study will also test whether an experimental blood test can detect the presence of Alzheimer’s disease.

From more information, visit https://trailblazer2study.com/

This international pivotal clinical drug study has been approved by The Bruyère Research Institute Ethics Board

Last updated: 2021-05-18
Home-Based Monitoring for Aging in Place by Dr. Neil Thomas

Conducted at the Bruyère Research Institute, Ottawa
Laura Ault
Study Coordinator
Email: lault@bruyere.org
Phone : 613-794-2625

Dr. Neil Thomas and his research team are testing the use of home sensing technology to capture information on activities of daily living, that could be used to detect cognitive decline. This study aims to determine methods for cognitive decline detection that are longitudinal versus the current methods that are episodic. 

Should you chose to participate, sensors will be installed around the home to capture motion to determine room occupancy and placed on doorways to detect opening and closing events to determine home exits. Other sensors include a pill box, bed mat, car driving sensor and a smart watch and scale. 

These sensors do not capture any personal identifying information and once they are installed, they are often forgotten by those who are currently living with them. The installation process is all virtual to minimize any risk of human contact.

This study has been approved by The Bruyère Research Institute Ethics Board

Last updated: 2021-06-23
Perceptions of the Caregiving Role Among Young-Onset Dementia Adult Child Caregivers
Conducted at the University of Waterloo
Email: C3berry@uwarerloo.ca
Phone : 519-503-2245

By obtaining more knowledge about the perceptions of young-onset dementia adult child caregivers in Canada, the findings of this study can assist with the future development of age[1]appropriate resources, services, and supports for this population. This study may also highlight the need for the expansion of future research to learn more about the perceptions of young-onset dementia adult child caregivers.

This study has been reviewed and received ethics clearance through a University of Waterloo Research Ethics Committee.

Last updated: 2021-05-18
An international study in rare or young-onset Dementia. The Rare Dementia Support (RDS) Impact Study
Conducted in collaboration between Nipissing University, Canada; University College London (UCL), England; and Bangor University, Wales
Email 1: adetolag@nipissingu.ca
Email 2: maryps@nipissingu.ca

Website: https://www.nipissingu.ca/academics/faculty-education-and-professional-studies/social-work/rare-dementia-support

The Rare Dementia Support (RDS) Impact Study is a 5-year (2020-2024) collaboration to examine the unique experiences and support needs of people living with rare or young onset dementias and their family care partners.

Between 5-15% of people living with dementia have a rare or young onset type, which tends to occur in younger people (under 65 years) and is not well understood. Study participants are invited to share their experience of living with or caring for someone living with a rare or young onset dementia to better understanding of the lived experience as well as the development of tailored support interventions and educational resources.

The study has been approved by Nipissing University Research Ethics Board.

Last updated: 2021-05-18
Supporting Family Caregivers of Persons Living with Dementia
Conducted at McMaster University and the University of Alberta
Natalie Meisenburg
Email: meisenno@mcmaster.ca

The study team is looking for family caregivers who are providing care for a family member or friend, aged 65 years and older, who is living in a long-term care home and has Alzheimer Disease or Related Dementia.

Family caregivers of persons with dementia undergo multiple transitions during their experience. Studies with caregivers of persons with dementia suggest that the experience of giving care can affect the physical and mental health of caregivers in both positive and negative ways.

The purpose of this phase of the study is to evaluate a new way of supporting family caregivers by determining how effective the approach is, and how it may influence factors such as your hope, quality of life, loss and grief, loneliness, and ability to deal with adverse situations. The overall goal of this research is to help caregivers.

Family caregivers who are eligible to participate in the study are:
• 18 years of age or older;
• Providing physical, emotional, or financial care for a family member or friend who is an older adult (65 years of age and older), who is currently living in a long term care home with Alzheimer Disease or Related Dementia
• English-speaking
• Able to use and have access to a computer/iPad/cell phone with internet; and
• Have an email address

Study participants will be randomly assigned to one of two different ways of supporting family caregivers. There is an equal chance of being assigned to either group, participants will not know to which group they have been assigned. At the end of the study, you will be given the opportunity to receive the approach that the other group had, and to ask any questions.

This research study has been reviewed by the Hamilton Integrated Research Ethics Board

Last updated: 2021-06-02
Knowledge mobilization of a strategy guideline to reduce the risks associated with getting lost among persons living with dementia 

Conducted at the University of Waterloo
Email: ebleung@uwaterloo..ca
Phone : 647-927-4711

The aim of this study is to evaluate the effectiveness of the Canadian Guideline for Safe Wandering website that recommends practical strategies to promote safe wandering (or walking) among persons with dementia.

 These strategies are customized to the participant based on their risk level of getting lost. Participants will complete an initial survey about their demographics and compare the paper and web versions of the guideline. Over the course of 3 weeks, participants will use the website and keep a diary to report on the strategies they are using to reduce their risk of getting lost. Participants will respond to prompts in a written/online/verbal diary once a week. At the end of 3 weeks, participants will complete a survey and participate in one of or both the survey and interview. The written or verbal diaries will be collected via mail or email. The interviews will be transcribed. Information gathered will be used to revise the website so that it is more accessible and helpful for persons living with dementia. This guideline will be made available with the provincial Alzheimer societies and other community organizations.

This study has been reviewed by, and received ethics clearance through a University of Waterloo Research Ethics Committee (#42516).

Last updated: 2021-07-07
Drone Delivery of AEDs (Automatic External Defibrillators) for Out of Hospital Cardiac Arrest (OOHCA): A Human Factors Analyses with Older Adult

Conducted at Carleton University
Email: laurentierney@cmail.carleton.ca
Phone : 613-400-9521

The aim of this study is to better understand evaluate the bystander experience of a simulated drone delivered AED for out of hospital cardiac arrest (OOHCA). 

Understanding people’s experiences with these novel health delivery technologies will help inform the design of drone delivered AEDs for OOHCA. Prior to participation in simulation scenario of a drone delivered AED, we ask that you complete this survey. This survey is intended to evaluate your eligibility, study group, demographics, and prior experience and knowledge of First Aid, CPR & AED training, technology, and drones.

 We estimate that the survey will take about 6-10 minutes to complete. Your participation in this survey is voluntary, and you may choose not to take part, or not to answer any of the questions. If you decide to withdraw after you submit the survey, we will remove your responses from survey data if you notify the researcher within two weeks. We expect to survey a minimum of 15 people.

This project was reviewed and cleared by the Carleton University Research Ethics Board, Clearance #116078. If you have any ethical concerns with the study, please contact the Carleton University Research Ethics Board by email at ethics@carleton.ca

Last updated: 2021-07-07
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