Challenge Dementia Stigma This Alzheimer’s Awareness Month
Learn about the impact of stigma and how we can change the narrative together.
January is Alzheimer’s Awareness Month
This January, we’re shining a light on the stigmas faced by people living with dementia and their caregivers. Together, we can challenge misconceptions, foster understanding, and build a more compassionate community. Join us in breaking the silence—share your story, talk about dementia, and say the word.
There are 5 types of stigmas people impacted by dementia face
Public Stigma
Negative attitudes and stereotypes held by society.
Example: A person with dementia is at a coffee shop and asks for help reading the menu. The staff member seems dismissive, assuming they’re just being difficult rather than recognizing they may need extra support.
Reminder: A little patience and kindness can make these interactions easier for everyone involved.
Self-Stigma
Internalized shame or fear of judgment by those diagnosed.
Example: After being diagnosed with dementia, someone stops attending their weekly exercise class, feeling like they don’t belong anymore or might be seen differently.
Reminder: It’s okay to ask for help or share your experiences. Many people are more understanding than we might expect.
Courtesy Stigma
Discrimination faced by caregivers or close connections.
Example: A person talks about supporting a loved one with dementia, and someone responds with pity instead of recognizing their strength and commitment.
Reminder: Caregivers do incredible work, asking “do you need support” goes a long way.
Affiliate Stigma
Stigma felt by family members or affiliates of someone with dementia.
Example: A family member of someone with dementia decides not to invite friends over because they worry their loved one’s condition will make others uncomfortable.
Reminder: Sharing your experiences can help break down misunderstandings and foster empathy.
Structural Stigma
Systemic barriers and biases in policies, services, and healthcare.
Example: A person with dementia applies for a service and is asked to complete paperwork that assumes they don’t need any accommodations, making the process harder for them.
Reminder: Systems that account for different needs help ensure everyone feels supported and valued.
Helpful Resources
The first step to challenging these stigmas is to improve your own understanding of what it means to live with dementia. Below you will find a collection of practical tools and resources from The Dementia Society that you can use to connect and better understand someone living with dementia.
Support Groups
Lending Library
Learning Hub
Your Voice Can Help End the Stigma
Your Story Matters
When you talk about your experience with dementia, you create awareness, challenge misconceptions, and normalize the experience for those living with it. Your voice has the power to inspire change.
