This project is led by researchers of the Canadian Consortium on Neurodegeneration in Aging (CCNA) and has been approved by the research ethics board of the CHUM (Centre Hospitalier de l’Université de Montréal) Research Centre. The CCNA is supported by a grant from the Canadian Institutes of Health Research (CIHR) with funding from several partners.
The purpose of this survey is to gain a better understanding of the journey of people with a diagnosis of frontotemporal dementia or a related disorder and of their caregivers within the Canadian healthcare system.
Canadians aged 18 years and older, who are either a:
Caregiver of a person who received a diagnosis of:
Healthcare provider of patients with aforementioned