Share your experience and contribute to the improvement of clinical care, by taking a Canada-wide online survey on clinical barriers in frontotemporal dementia or a related disorder, and of their caregivers within the Canadian healthcare system.

This project is led by researchers of the Canadian Consortium on Neurodegeneration in Aging (CCNA) and has been approved by the research ethics board of the CHUM (Centre Hospitalier de l’Université de Montréal) Research Centre. The CCNA is supported by a grant from the Canadian Institutes of Health Research (CIHR) with funding from several partners.

Why this study

The purpose of this survey is to gain a better understanding of the journey of people with a diagnosis of frontotemporal dementia or a related disorder and of their caregivers within the Canadian healthcare system.

Eligibility

Canadians aged 18 years and older, who are either a:

Caregiver of a person who received a diagnosis of:

• Frontotemporal dementia (FTD) – behavioural variant
• Primary progressive aphasia (PPA)
• Corticobasal syndrome (CBS)
• Progressive supranuclear palsy (PSP)
• FTD with amyotrophic lateral sclerosis (FTD with ALS)

or

Healthcare provider of patients with aforementioned
clinical diagnoses.

For more information, contact: frontotemporal.research@gmail.com