As a caregiver, it is important to plan ahead in case of an unexpected event or crisis. There could also be events that prevent you from continuing your caregiving role. A detailed plan can help others in case you are unavailable. You might be wondering:
What are the first steps for creating a back-up plan?
- Identify someone you trust who could step in if needed (your support system).
- Communicate with your support system on an ongoing basis.
- Create a weekly or monthly schedule to keep track of appointments.
- Create a physical or digital file with important information. Tell your support system where it is and how to access it:
- Write out the person with dementia’s typical daily routine.
- List contact information (Family Doctor, Dentist, Lawyer, Accountant, Landlord, Dementia Care Coach, etc.).
- List important medication information (description, dosage, etc.).
- List health care conditions and allergies. Make a copy of their health card.
- Keep a physical copy on the fridge. First-responders will check the fridge for this information in an emergency.
What should I be adding to the plan?
Make sure to update the file on an ongoing basis to include health information like:
- Symptoms, behaviours, or common triggers that an outsider would need to know in an
emergency. For example: “he often experiences paranoia in the evening” - Any special health care needs. For example: “needs a walker”, “is blind in right eye”.
What documents should I keep handy?
Make sure a trusted person knows the location of the following documents:
- Advanced planning information: E.g., Will and Testament; Power of Attorney document
- Names of companies and contact information. E.g., for water, electricity, heat, cable, and telephone.
- Banking information and insurance policies.
- Titles and deeds to property and vehicles.
- Care plan for pets. E.g., Name of kennel, people who can care for the pet, important care instructions.
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When might someone need this information?
- The primary caregiver experiences burnout or becomes ill. Changes in the person’s dementia occur suddenly and more support is needed.
- A break is needed from caregiving for other reasons.
- Reaching the person with dementia is not possible for reasons beyond your control (e.g., bad
weather, car trouble).
Are there resources available to help get organized?
- Senior Emergency Kit – The Family Caregiver Alliance website offers this “Emergency Preparedness Checklist for Caregivers”.
- Workbook on advance care planning: Advance Care Planning Ontario offers an online workbook.
- Fact sheet: This Dementia Society fact sheet focuses on maximizing income and benefits.